News & Views

Read the latest RCOphth news updates and guidance here.

News

Rare Disease Day: 28 February 2022

Monday 28 February is Rare disease day, a day for raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. This year the British Ophthalmological Surveillance Unit will celebrate 25 years of rare disease surveillance so today seemed a good opportunity to recognise how this globally unique research unit has impacted the treatment and management of many rare eye conditions. The BOSU has supported over 80 high impact studies of excellent quality that have broadened knowledge and understanding and brought benefit for patients across ophthalmic subspecialties and demographics.

News

The impact of COVID-19 on Ophthalmology Clinical Research in the UK and support via the NIHR RESTART Framework

Prior to COVID-19, approximately 80% of Trusts were engaged with at least one study, with on average 15,000 patients recruited to Ophthalmology studies per year. The NIHR’s Ophthalmology Specialty Group (OSG) for the Clinical Research Network has been working closely with its regional leads across the UK to support the sites where 41% of portfolio studies have been paused because of COVID.